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Openai/6916315d-71c4-800d-a11f-d5bf0378dc6f
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==== 3) Wohin mit so einem Fall? â passende Zentren in DE ==== ===== A) Bei Verdacht auf NET (inkl. DOTATATEâPET/CT, mesenteriale Fibrose) ===== * ENETS âCenters of Excellenceâ (CoE) â offizieller Ăberblick & Karte: enets.org<ref>{{cite web|title=enets.org|url=https://www.enets.org/list-of-coes.html|publisher=enets.org|access-date=2025-11-13}}</ref> * CharitĂ© Berlin â ENETSâCoE (NETâZentrum, CCCC), mit expliziter CoEâDarstellung/Kontakt: CharitĂ© Hepatology & Gastroenterology<ref>{{cite web|title=CharitĂ© Hepatology & Gastroenterology|url=https://hepatologie-gastroenterologie.charite.de/en/medical_services/center_of_excellence_coe_for_neujroendocrine_tumor_diseases|publisher=CharitĂ© Hepatology & Gastroenterology|access-date=2025-11-13}}</ref> * Marburg â ENETSâCenter am UKGM (zertifiziert, Stand 31.01.2025): CCC Marburg<ref>{{cite web|title=CCC Marburg|url=https://www.ccc-marburg.de/en/centers/enets-center-for-neuroendocrine-tumors|publisher=CCC Marburg|access-date=2025-11-13}}</ref> * TĂŒbingen â ENETSâCoE: medizin.uni-tuebingen.de<ref>{{cite web|title=medizin.uni-tuebingen.de|url=https://www.medizin.uni-tuebingen.de/en-de/das-klinikum/einrichtungen/kliniken/medizinische-klinik/innere-medizin-viii/enets-excellenz|publisher=medizin.uni-tuebingen.de|access-date=2025-11-13}}</ref> ===== B) Bei âunklar, alles erschöpftâ (interdisziplinĂ€re Falldiskussion/Koordination) ===== * Zentrum fĂŒr unerkannte und seltene Erkrankungen (ZusE) Marburg â Kontakt: zuse@uk-gm.de, Tel. 06421â586âŻ4357 (MoâDo 8â12âŻUhr). ukgm.de<ref>{{cite web|title=ukgm.de|url=https://www.ukgm.de/ugm_2/deu/umr_zuk/27261.html|publisher=ukgm.de|access-date=2025-11-13}}</ref> * Berliner Centrum fĂŒr Seltene Erkrankungen (BCSE) â CharitĂ© (Team fĂŒr Erwachsene/Kinder, zentrale Koordination): +49âŻ30âŻ450âŻ566âŻ766. bcse.charite.de<ref>{{cite web|title=bcse.charite.de|url=https://bcse.charite.de/|publisher=bcse.charite.de|access-date=2025-11-13}}</ref> * ZSE Heidelberg / ZSE TĂŒbingen â strukturierte Lotsen/AnmeldeâWege (auch AmyloidoseâAmbulanz Heidelberg u.âŻa.). UniversitĂ€tsklinikum Heidelberg<ref>{{cite web|title=UniversitĂ€tsklinikum Heidelberg|url=https://www.klinikum.uni-heidelberg.de/interdisziplinaere-zentren/zentrum-fuer-seltene-erkrankungen/fuer-aerzte/spezialambulanzen|publisher=UniversitĂ€tsklinikum Heidelberg|access-date=2025-11-13}}</ref> : Tipp: FĂŒr die Anmeldung kurz begrĂŒnden: âUnklarer, progredienter DĂŒnndarmâ/Peritonealprozess mit Stenosen, Aszites, massiver Kachexie â Tumor/Lymphom/Tbc bisher ausgeschlossen â Bitte um interdisziplinĂ€re Zweitmeinung, inkl. NETâDiagnostik (â¶âžGaâDOTATATE), MesenteritisâAbklĂ€rung, MotilitĂ€tsdiagnostik/AGID.â
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